Patient Experience of Living with CRPS during a Global Pandemic

The anonymised comments below were captured during a section of an event hosted by The Walton Centre, Liverpool in January 2021. An open discussion was held with 53 patients who all have a diagnosis of CRPS. They were asked to voice their concerns, opinions and experiences of having CRPS during the COVID-19 pandemic.

Patient Experience of Living with CRPS during the pandemic

Other general comments (not necessarily only related to the pandemic) included:

  • "Any emotion triggers an emotional response"

  • "No help for relatives - as relative have lost the person I married. Would love a chance for exchange with other in similar situation. Feel isolated"

  • "Photophobia confirmed"

  • "As patient: feel guilty to go to bed early as my partner would love to do something"

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