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CRPS Network UK
Bath Institute For Rheumatic Diseases, Second Floor, RNHRD, Upper Borough Walls, Bath, BA1 1RL
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Patient Experience of Living with CRPS during a Global Pandemic
The anonymised comments below were captured during a section of an event hosted by The Walton Centre, Liverpool in January 2021. An open discussion was held with 53 patients who all have a diagnosis of CRPS. They were asked to voice their concerns, opinions and experiences of having CRPS during the COVID-19 pandemic.
Other general comments (not necessarily only related to the pandemic) included:
"Any emotion triggers an emotional response"
"No help for relatives - as relative have lost the person I married. Would love a chance for exchange with other in similar situation. Feel isolated"
"Photophobia confirmed"
"As patient: feel guilty to go to bed early as my partner would love to do something"
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