Patient Experience of Living with CRPS during a Global Pandemic

The anonymised comments below were captured during a section of an event hosted by The Walton Centre, Liverpool in January 2021. An open discussion was held with 53 patients who all have a diagnosis of CRPS. They were asked to voice their concerns, opinions and experiences of having CRPS during the COVID-19 pandemic.

Other general comments (not necessarily only related to the pandemic) included:

• "Any emotion triggers an emotional response"

• "No help for relatives - as relative have lost the person I married. Would love a chance for exchange with other in similar situation. Feel isolated"

• "Photophobia confirmed"

• "As patient: feel guilty to go to bed early as my partner would love to do something"