The CRPS UK Registry data can be used for any research study or clinical trial approved by the CRPS UK Registry Steering Committee, without the explicit consent of the individual collaborating centres.
All members of the Working Group that provide data should be informed of any analysis being carried out on the Registry data.
All Research Projects
Patients need to be registered with a Network Registry collaborating centre in order to be eligible to take part in any of the research studies listed below.
In line with the General Data Protection Regulations (GDPR), which took effect on 25th May 2018, the NHS Health Research Authority (HRA) has published information for patients relating to health and social care research. This can be accessed from their website via the following link - https://www.hra.nhs.uk/information-about-patients/
Active CRPS Registry Studies:
Core Outcome Measurement set for complex regional PAin syndrome Clinical sTudies (COMPACT) - sponsored by the Royal United Hospitals Bath NHS Foundation Trust
Genetic Pain Study - sponsored by Cambridge University Hospitals NHS Foundation Trust and The University of Cambridge
Sensorimotor Training Study - sponsored by the University of Bath
Cortical Reorganisation (CoRe) Study - sponsored by Cambridge University Hospitals NHS Foundation Trust and The University of Cambridge
CRPS International Recovery Study
LIPS Trial Study